> Markdown version of [/jobs/ext/2026420-director-pss-rare-disease-data-strategy-architecture-and-governance](https://www.wearedevelopers.com/jobs/ext/2026420-director-pss-rare-disease-data-strategy-architecture-and-governance). Every page supports `.md` or `Accept: text/markdown`. Links point to the HTML versions so they work for humans too. Agent guide: [/agents.md](https://www.wearedevelopers.com/agents.md). --- # Director, PSS Rare Disease Data Strategy, Architecture and Governance - **Company:** Sanofi - **Location:** Cambridge, MA, United States - **Experience:** Expert - **Contract:** Permanent contract - **Skills:** Application Programming Interfaces (APIs), Data Architecture, Data Governance, Data Integration, Data Sharing, Data Structures, Data Streaming, Data Strategy, Core Data, Data Management, Data Pipelines - **Published:** August 11, 2026 - **Apply:** https://us.experteer.com/career/view-jobs/director-pss-rare-disease-data-strategy-architecture-and-governance-cambridge-ma-usa-58895257 ## About the Role Design end-to-end PSS data architecture spanning core platforms, data mesh, and analytics * Define data structure across prescription, buy-and-bill, and hub journeys * Document and communicate data integration of hundreds of data points for insights, automation, and action * Define integration patterns (APIs, data pipelines, controlled data sharing) * Manage and evolve datasets including EHR and SP/hub data * Ensure data flows support real-time and near-real-time operations * Defend data standards and plan for new data sources and processes * Define data meaning, catalog, and lineage for audits * Implement data quality rules across all sources * Drive data governance and access controls with privacy and compliance in mind * Collaborate on data privacy standards and consent management; ensure HIPAA compliance * Evaluate opportunities with new data acquisitions and prevent redundancy Tasks * Bachelor's degree (required) * 7-10+ years in data architecture, governance, or engineering * aaU _ years in healthcare/pharma/patient services * Experience with PHI and healthcare data compliance * Proven track record designing data governance frameworks in complex environments * Senior leadership experience in enterprise, matrixed organizations * Experience with patient support services, specialty pharmacy, or hub services preferred Key requirements * high-quality healthcare * prevention and wellness programs * at least 14 weeks gender-neutral parental leave * rewarding career growth opportunities * hybrid work arrangement * wellbeing benefits ## Description Experteer Overview In this leadership role, you own and shape the data strategy and governance for Sanofi's Rare Disease Patient Support Services. You will bridge Digital/IT, US Data Management, Product Services, and Operations to ensure data foundations power insights, automation, and improved patient outcomes. You lead end-to-end data architecture, stewardship, and compliance across a complex, multi-platform landscape. You will co-design and enforce data standards, balancing business value with technical rigor in a highly regulated environment. This role offers impact across post-enrollment and patient journeys, with a focus on data-driven care at scale. Compensation / Benefits * Own the PSS perspective on the Digital roadmap and align data initiatives with business objectives * Bridge enterprise teams to prioritize PSS requirements * Provide strategic oversight of core data platforms and emerging technologies * Represent PSS data interests to stakeholders and governance forums * Design end-to-end PSS data architecture spanning core platforms, data mesh, and analytics * Define data structure across prescription, buy-and-bill, and hub journeys * Document and communicate data integration of hundreds of data points for insights, automation, and action * Define integration patterns (APIs, data pipelines, controlled data sharing) * Manage and evolve datasets including EHR and SP/hub data * Ensure data flows support real-time and near-real-time operations * Defend data standards and plan for new data sources and processes * Define data meaning, catalog, and lineage for audits * Implement data quality rules across all sources * Drive data governance and access controls with privacy and compliance in mind * Collaborate on data privacy standards and consent management; ensure HIPAA compliance * Evaluate opportunities with new data acquisitions and prevent redundancy Tasks * Bachelor's degree (required) * 7-10+ years in data architecture, governance, or engineering * 3-5+ years in healthcare/pharma/patient services * Experience with PHI and healthcare data compliance * Proven track record designing data governance frameworks in complex environments * Senior leadership experience in enterprise, matrixed organizations * Experience with patient support services, specialty pharmacy, or hub services preferred Key requirements * high-quality healthcare * prevention and wellness programs * at least 14 weeks gender-neutral parental leave * rewarding career growth opportunities * hybrid work arrangement * wellbeing benefits ## Related Videos - [From Messy Queries to Scalable Systems - How Data Engineering actually works](https://www.wearedevelopers.com/videos/100203-from-messy-queries-to-scalable-systems-how-data-engineering-actually-works) - [Designing How Work Feels: The Science Behind Sanofi’s Workplace Experience](https://www.wearedevelopers.com/videos/1848-designing-how-work-feels-the-science-behind-sanofi-s-workplace-experience) - [Smart City, Smart Mobility](https://www.wearedevelopers.com/videos/954-smart-city-smart-mobility) - [Hacking Your Vacation: Using Data for Fun](https://www.wearedevelopers.com/videos/585-hacking-your-vacation-using-data-for-fun) - [Data Governance in the Era of AI](https://www.wearedevelopers.com/videos/1622-data-governance-in-the-era-of-ai) - [Empowering Retail Through Applied Machine Learning](https://www.wearedevelopers.com/videos/976-empowering-retail-through-applied-machine-learning) ## Related Articles - [Highest Paying Tech Companies for Developers](https://www.wearedevelopers.com/magazine/220-highest-paying-tech-companies-for-developers) - [How We Built a Worry-Free System That Runs for 10+ Years – And What We’d Do Again](https://www.wearedevelopers.com/magazine/751-how-we-built-a-worry-free-system-that-runs-for-10-years-and-what-we-d-do-again) - [Data Analyst Salary in the UK](https://www.wearedevelopers.com/magazine/278-data-analyst-salary-in-the-uk) - [Coffee with Developers - Maria Apazoglou - Making AI understandable for all in production](https://www.wearedevelopers.com/magazine/475-coffee-with-developers-maria-apazoglou-making-ai-understandable-for-all-in-production) - [The 12 Best Jobs for Software Engineers](https://www.wearedevelopers.com/magazine/401-the-12-best-jobs-for-software-engineers) - [Best Companies to Work For in Paris: Top 25 Companies in 2023 ](https://www.wearedevelopers.com/magazine/190-best-companies-to-work-for-in-paris-top-25-companies-in-2023)