Director, PSS Rare Disease Data Strategy, Architecture and Governance

Experteer Overview In this leadership role, you own and shape the data strategy and governance for Sanofi’s Rare Disease Patient Support Services. You will bridge Digital/IT, US Data Management, Product Services, and Operations to ensure data foundations power insights, automation, and improved patient outcomes. You lead end-to-end data architecture, stewardship, and compliance across a complex, multi-platform landscape. You will co-design and enforce data standards, balancing business value with technical rigor in a highly regulated environment. This role offers impact across post-enrollment and patient journeys, with a focus on data-driven care at scale. Compensation / Benefits * Own the PSS perspective on the Digital roadmap and align data initiatives with business objectives * Bridge enterprise teams to prioritize PSS requirements * Provide strategic oversight of core data platforms and emerging technologies * Represent PSS data interests to stakeholders and governance forums * Design end-to-end PSS data architecture spanning core platforms, data mesh, and analytics * Define data structure across prescription, buy-and-bill, and hub journeys * Document and communicate data integration of hundreds of data points for insights, automation, and action * Define integration patterns (APIs, data pipelines, controlled data sharing) * Manage and evolve datasets including EHR and SP/hub data * Ensure data flows support real-time and near-real-time operations * Defend data standards and plan for new data sources and processes * Define data meaning, catalog, and lineage for audits * Implement data quality rules across all sources * Drive data governance and access controls with privacy and compliance in mind * Collaborate on data privacy standards and consent management; ensure HIPAA compliance * Evaluate opportunities with new data acquisitions and prevent redundancy Tasks * Bachelor’s degree (required) * 7-10+ years in data architecture, governance, or engineering * 3-5+ years in healthcare/pharma/patient services * Experience with PHI and healthcare data compliance * Proven track record designing data governance frameworks in complex environments * Senior leadership experience in enterprise, matrixed organizations * Experience with patient support services, specialty pharmacy, or hub services preferred Key requirements * high-quality healthcare * prevention and wellness programs * at least 14 weeks gender-neutral parental leave * rewarding career growth opportunities * hybrid work arrangement * wellbeing benefits

Design end-to-end PSS data architecture spanning core platforms, data mesh, and analytics * Define data structure across prescription, buy-and-bill, and hub journeys * Document and communicate data integration of hundreds of data points for insights, automation, and action * Define integration patterns (APIs, data pipelines, controlled data sharing) * Manage and evolve datasets including EHR and SP/hub data * Ensure data flows support real-time and near-real-time operations * Defend data standards and plan for new data sources and processes * Define data meaning, catalog, and lineage for audits * Implement data quality rules across all sources * Drive data governance and access controls with privacy and compliance in mind * Collaborate on data privacy standards and consent management; ensure HIPAA compliance * Evaluate opportunities with new data acquisitions and prevent redundancy Tasks * Bachelor’s degree (required) * 7-10+ years in data architecture, governance, or engineering * aaU _ years in healthcare/pharma/patient services * Experience with PHI and healthcare data compliance * Proven track record designing data governance frameworks in complex environments * Senior leadership experience in enterprise, matrixed organizations * Experience with patient support services, specialty pharmacy, or hub services preferred Key requirements * high-quality healthcare * prevention and wellness programs * at least 14 weeks gender-neutral parental leave * rewarding career growth opportunities * hybrid work arrangement * wellbeing benefits